Yesterday, we featured a guest post about the ADDRESS-2 project. You can read that post here. In this guest blog, Matt, who joined the ADDRESS 2 project shortly after receiving his diagnosis, describes what happened next.
What did you feel when being approached about research very soon after diagnosis?
What motivated you or influenced your decision to take part in ADDRESS-2, and any other study that you have joined?
I wanted to help in any way I could, and turn something good from a bad situation (my diagnosis). I also was curious whether participating might help me find out any more information about my condition. I hoped it might help in providing a step closer to future medicines that might benefit me, or someone like me, in the future.
What would have put you off taking part in research?
Too much time off work. As a freelancer, any missed days are lost revenue. Although this didn’t affect the ADDRESS-2 study, it has prevented me taking part in other Diabetes studies.
Is there any one thing that you especially remember about taking part in ADDRESS-2 and other studies?
The amount of blood that was take was quite a lot from memory. I’m sure this was necessary, but I felt a bit dizzy afterwards and had a hypo as I was leaving. This may have not been related, but it was a bit scary leaving the hospital, but I had to get to work so had to deal with it.
What do you think is a good time or a good way to approach people about research?
Being offered to take part in research provides some needed hope when a patient has just received bad news, so it’s possibly a good time to approach people. I also think patients are more likely to agree to be involved in research at this time due to the perceived possible personal gain (whether this is actually true or not). Highlighting the additional potential help and clinical support was a big factor in agreeing to participate (in the MultiPepT1D trial).