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Home > Knowledge & support > Resource hub > Margaret’s story
Fleur had always been such a healthy child, so I couldn’t believe it when her mother, Ruth, told me she had type 1 diabetes. I was on holiday at the time and rushed straight to the hospital when I got back.
My thoughts seemed to change every minute and I would say to myself, “At least it’s not a tumour”. I thought I knew about type 1 but I soon realised I didn’t. As we all learned about it I felt more in control – but also more scared.
I worry about Fleur’s future and how she will cope in secondary school, with exams and travel. I’ve also been very worried about my daughter and son-in-law. They are doing a wonderful job with Fleur and dealing with her condition hourly. But who is helping them? I live 60 miles away and I wouldn’t know what to do when Fleur’s blood glucose goes high or low.
Ruth has always been a very positive person, but I have seen her become less so, worrying about all the possible complications Fleur could face.
My life has also changed as I feel neither confident nor competent enough to look after Fleur without Ruth or Steve there. They used to come and stay with me in the holidays and we would go to the cinema, circus and restaurants. Last summer we were digging up potatoes and picking tomatoes together in my garden. Now when I go past a favourite restaurant I hope that I will be able to take Fleur there again on my own, someday.
The amount of type 1 research that is happening is very reassuring. I have a neighbour with the condition who tells me there has been a sea-change in treatments for type 1 over the past 30 years and that everything is improving. Complications don’t need to happen if type 1 is managed properly. And I have been reading about islet transplantation, stem cell research and artificial pancreas trials and it is very encouraging. It feels like this is a very promising time in research.
Children should never have to struggle with type 1 – it’s so important to find a cure and better treatments. Now that I understand what JDRF does, I have no qualms about supporting them and I feel they have become part of our lives. I believe so much in JDRF’s research, I want to leave a gift in my Will to help.
Leaving a gift in your Will to JDRF, no matter how much you choose to leave, means you will continue to make life better for everyone with type 1, after you are gone.
Getting connected is a great way to learn about type 1 and get support from people who understand what you’re going through.
Read type 1 diabetes news, including the latest progress in type 1 research, new treatments and technologies and all our funding updates.
JDRF Type 1 Diabetes Discovery Events are free events and a great opportunity to meet others with type 1, find out about the latest research progress, and hear inspirational talks from a range of speakers.
Manisha is a design & technology teacher with a passion for raising awareness about type 1.
How setting up Maidstone’s first Pride helped teen Kitty overcome her fear of CGM.
Our Scientific Advisory Council (SAC) makes sure that the research we fund and the policy work we do in the UK is the most promising and relevant for people living with type 1 diabetes. In this blog, members of the SAC share their experience of being in this important role.
Seth Moores was diagnosed as being in the early stages of type 1 diabetes through the JDRF-funded ELSA study. In this blog, his mum, Clare, tells us how getting diagnosed early has prepared them for what lies ahead.
