Skip to main content
Shared experience

Margaret’s story

Margaret couldn’t believe it when her granddaughter Fleur was diagnosed with type 1 but she hopes a gift in her Will to JDRF can help find the cure.

Margaret and her granddaughter Fleur.

Fleur had always been such a healthy child, so I couldn’t believe it when her mother, Ruth, told me she had type 1 diabetes. I was on holiday at the time and rushed straight to the hospital when I got back.

My thoughts seemed to change every minute and I would say to myself, “At least it’s not a tumour”. I thought I knew about type 1 but I soon realised I didn’t. As we all learned about it I felt more in control – but also more scared.

I worry about Fleur’s future and how she will cope in secondary school, with exams and travel. I’ve also been very worried about my daughter and son-in-law. They are doing a wonderful job with Fleur and dealing with her condition hourly. But who is helping them? I live 60 miles away and I wouldn’t know what to do when Fleur’s blood glucose goes high or low.

Ruth has always been a very positive person, but I have seen her become less so, worrying about all the possible complications Fleur could face.

My life has also changed as I feel neither confident nor competent enough to look after Fleur without Ruth or Steve there. They used to come and stay with me in the holidays and we would go to the cinema, circus and restaurants. Last summer we were digging up potatoes and picking tomatoes together in my garden. Now when I go past a favourite restaurant I hope that I will be able to take Fleur there again on my own, someday.

The amount of type 1 research that is happening is very reassuring. I have a neighbour with the condition who tells me there has been a sea-change in treatments for type 1 over the past 30 years and that everything is improving. Complications don’t need to happen if type 1 is managed properly. And I have been reading about islet transplantation, stem cell research and artificial pancreas trials and it is very encouraging. It feels like this is a very promising time in research.

Children should never have to struggle with type 1 – it’s so important to find a cure and better treatments. Now that I understand what JDRF does, I have no qualms about supporting them and I feel they have become part of our lives. I believe so much in JDRF’s research, I want to leave a gift in my Will to help.

You may also be interested in

Read more
Two women dancing at a ball

The type 1 community

Getting connected is a great way to learn about type 1 and get support from people who understand what you’re going through.

Read more
A JDRF scientist working on type 1 diabetes research in a lab

JDRF's type 1 diabetes news

Read type 1 diabetes news, including the latest progress in type 1 research, new treatments and technologies and all our funding updates.

Read more
JDRF staff and families at a JDRF Type 1 Diabetes Discovery event

Discovery events

JDRF Type 1 Diabetes Discovery Events are free events and a great opportunity to meet others with type 1, find out about the latest research progress, and hear inspirational talks from a range of speakers.

More shared experiences

Read more
Temi Olonisakin smiling at the camera over her shoulder with her continuous glucose monitor visible.
Shared experience

What would I do in a zombie apocalypse?

Temi Olonisakin has been living with type 1 for 12 years. A doctor herself, she shares what she’s learned about managing type 1 diabetes and her emotional wellbeing.  

Read more
A photo of Dr Chloe Rackham wearing a labcoat.

"I understand how tough it can be living with type 1 and this motivates me to work towards a cure"

Dr Chloe Rackham was diagnosed with type 1 diabetes at age 13 and is now running a JDRF-funded lab at the University of Exeter. Chloe tells us how having type 1 helps motivate her and how she switches off from her type 1.

Read more
Reece Parkinson wearing a running jacket and out in the countryside
Shared experience

Community, challenges and technology – Reece Parkinson on life with type 1

Broadcaster and communications specialist Reece Parkinson was diagnosed with type 1 when he was 26. Since then, he's used his platform to inspire others.

Read more
Mischa Rodgers, who lives with type 1, at her job as a production coordinator for Sky Sports.
Shared experience

"Being honest allows people to help and support you"

Sports-mad production coordinator Mischa Rodgers has had to learn how to manage adrenaline surges in her fast-paced job with Sky Sports.

Connect with us on social