Skip to main content

JDRF is undergoing a transformation.
We are becoming Breakthrough T1D in October.

breakthrought1d logo
Shared experience

“CBT helped me to accept my diagnosis” – using therapy to live well with type 1

Carole was misdiagnosed with type 2 diabetes when she was 50. After being correctly diagnosed with type 1, she accessed cognitive behavioural therapy (CBT) to help her come to terms with living with the condition.
Content last reviewed and updated: 02.01.2024

Carole, who was diagnosed with type 1 in her fifties and accessed cognitive behavioural therapy to help manage the condition.

I was going through a very difficult time in my personal life and I wasn’t well. I was diagnosed with type 2 diabetes and started on oral medication.

But over a period of around 12 months my HbA1c level was not coming down. I was becoming more and more unwell. I lost a lot more weight to the point that a lot of my muscle mass went and I was unnaturally thin.

I work in healthcare and one of the consultants at the hospital asked me if I was ok. I said I’d just been diagnosed with type 2 diabetes. He was sceptical and told me to ask for an antibody test because he thought it was type 1.

I did the antibody test and it was positive. Within a couple of days, I was seeing the diabetic nurse and I started on insulin.

It was a massive shock at that time in my life. Being an ex-nurse, I understood the physiology and I was just really frightened. I kept thinking, they’re going to realise they’ve made a mistake. I was in denial and angry. Why me? What have I done to cause this to happen?

“Diabetes on my shoulder”

I now had this diabetes sitting on my shoulder every day poking me, saying, ‘What’s your blood sugar’ every minute of every day. It felt like all I had to think about was the diabetes. It felt a huge responsibility.

I’d had 50 years of my life without it, and then I was tied to this insulin pen and blood glucose monitor all the time. Suddenly, you’ve got to take all this kit with you everywhere you go. You’ve got to take jelly babies everywhere you go. Every time you put something in your mouth, you’ve got to think, what is my blood sugar? How much insulin do I need?

Losing a sense of self

After my diagnosis, my diabetes was defining me. I stopped being Carole and became ‘a diabetic’. But I felt that if I told people that I was a diabetic, they would see me as weak and not as competent as I was before. I didn’t want people to feel sorry for me.

I’d go into a lunchtime meeting and I wouldn’t say I need to eat something. I was embarrassed to bring attention to myself. I would get back to my desk and be crushingly hypo and then need to urgently try to resolve this.

I thought, I’m a healthcare professional, I’m an intelligent woman, I have a Master’s degree. I should be able to sort this out. In general life, if I come across a challenge or anything, then I sort it out. I was trying to control diabetes and getting really frustrated and hugely disappointed with myself when I couldn’t.

Getting support

It got to the point where my family and my husband talked to me about it. This was about five years after my diagnosis. They recognised how un-happy I was and encouraged me to find some help and support.

It was a bit of a watershed moment. I realised the way I was feeling was not because I was weak or couldn’t cope or wasn’t able to manage my diabetes. I was doing my best every day.

I started to look at what mental health support was available, and I found a self-referral form online. I got a response quite quickly. I was offered CBT therapy.

A difficult start

I was at the point where I wanted a quick fix. I wanted someone to take away the diabetes. I was unsure this would make a difference.

I thought, what’s this therapist going to do for me if she doesn’t know about type 1? It was only when she started to explore my personality and my coping strategies for life and its challenges, that she could bring it all together and relate it to how I was reacting and responding to my diabetes. It was a holistic look at me as a person. It was challenging voyage of self-discovery, but worth it.

On a roll

We did around eight sessions. They give you homework at each session. At first I struggled to engage and do the homework. And then I thought to myself, if you don’t do it, what’s the point? Once I did start to engage week after week, I was on a roll. As I progressed, I could hear myself changing the way that I thought. CBT gave me strategies and self-support techniques that have not only helped me accept and live with my diabetes, but also positively impacted on my life in general. I still draw on these techniques today.

Finding freedom in technology

I started using Freestyle Libre about four years ago and it’s absolutely revolutionised how I feel about my diabetes. It has freed me up. I love it when people say to me, what’s that on your arm? I’m quite proud of it and happy to say I am a diabetic. I would never have done that before. I wouldn’t even have uncovered it.

Acceptance through CBT

CBT helped me to accept my diagnosis and to see that I can live with diabetes, but diabetes doesn’t define who I am. I’m comfortable with the fact that I have the condition. I understand it. I know what I need to do. And I know that it won’t always be perfect.

What is CBT?

The NHS describes cognitive behavioural therapy (CBT) as a talking therapy to help you manage problems and issues by changing the way you think and behave. Find out more about CBT.

You may also be interested in

Read more
Two men hugging to support their emotional wellbeing

Emotional wellbeing

Managing type 1 can be tough. Get advice and tips on type 1 and emotional wellbeing.

Read more
A lady standing on a beach wearing cold weather clothes speaking about her new type 1 diabetes diagnosis

Our guide for newly-diagnosed adults

Read our guide for newly-diagnosed adults including information on the type 1 essentials, how to manage glucose levels, type 1 technology and how to connect with others with type 1.

Read more
An older woman using a mobile phone app to scan her glucose sensor as part of type 1 diabetes management

Type 1 technology

Find out about the different devices that can help you manage your glucose levels and your insulin intake.

More shared experiences

Read more
A close-up selfie of Seth and Clare Moores in the sunshine.

“Knowing Seth will need insulin in the future has given us the chance to get our heads around it.”

Seth Moores was diagnosed as being in the early stages of type 1 diabetes through the JDRF-funded ELSA study. In this blog, his mum, Clare, tells us how getting diagnosed early has prepared them for what lies ahead.

Read more
Nadeem Masood wearing a high vis vest and sitting on a chair at the finish line of an event.
Shared experience

When I first started using a blood glucose sensor, it was honestly life-changing

Nadeem Masood talks to us how he manages type 1 diabetes at work, whether he’s in the office or out and about at events.

Read more
Mia-Imani wearing a white halter neck prom dress, smiling for the photo and wearing a glucose sensor on her upper arm.
Shared experience

"I'm not as scared to wear my sensor out."

Mia-Imani Williams was diagnosed with type 1 diabetes in September 2022. We spoke to 11-year-old Mia-Imani about diagnosis, wearing her glucose sensor to prom and the support she gets from her family and friends.

Read more
A close up photo of Billy Cole smiling.
Shared experience

A needle phobia doesn’t need to hold you back

When needle-phobic Billy Cole was diagnosed with type 1 diabetes aged 56, trying to finger prick and inject was consuming his whole life. Here, the former British Commonwealth-winning athlete shares how he overcame his phobias and gives insight to others dealing with similar fears.

Connect with us on social