We support resources worldwide that are relevant to scientists working in the area of type 1 diabetes and their research. These include:
- Health Data Access Toolkit was launched bt the Medical Research Council Regulatory Support Centre to help researchers navigate the processes required to gain access to routinely collected NHS health data. The kit signposts approvals required for research and explores the issues that need to be considered during the application processes.
- Samples for biomarker studies
- Human Pancreatic Islets for Basic Science Studies (PDF download)
- The Pancreatic ß-Cell Functional Differentiation Analysis Laboratory (PDF download)
- Network for Pancreatic Organ Donors with Diabetes (nPOD)
- ADDRESS-2 is a database, funded by both JDRF and Diabetes UK, of people who have been newly diagnosed with type 1 and their siblings that have consented to be approached to take part in research studies.
- Diabetes Biobank Brussels
- Alan Foulis Collection – The Exeter Archival Diabetes Biobank
- Willy Gepts Collection – The disease process in type 1 diabetes discovered
- Register or search for human tissue samples online – UKCRC Tissue Directory aims to improve the visibility of human tissue samples and data for research purposes.
This list will be updated periodically, but if you would like any resources to be included, contact us at email@example.com.
Patient and Public Participation or Involvement in Research
We can to help researchers with participation, engagement and involvement by reaching out to our supporters or advertising studies. To ensure consistency and to determine the suitability of our involvement, JDRF has established a process to help guide our decisions about advertising research studies and surveys.
Could you please provide the following documents to firstname.lastname@example.org:
– the study protocol (what you have submitted to gain ethical approval)
– the draft participant information sheet (as submitted to gain ethical approval or as approved)
– any draft survey/questionnaire in word/pdf format (if applicable)
– the Research Ethics Committee approval (as soon as it is obtained)
– the number of participants you are looking to recruit
– the deadline to recruit them by
– a short “advertising” text, a link to your study/survey and an image that we could use on our social media channels?
Once we have reviewed these documents, we will be able to confirm if we can advertise the study.
If it is approved, we will request that feedback is provided to the participants and that the results of the study are shared with JDRF. We also request acknowledgement of JDRF support. Please refer to JDRF as “JDRF, the type 1 diabetes research charity”.
Patient and Public Involvement in Clinical Research
We can also help researchers recruit people with type 1 diabetes to take part in clinical research and we are one of the ten charity partners for the UK Clinical Trials Gateway.
JDRF Reference Documents
JDRF Grant Center website contains information for applicants and awardees, JDRF funded research and JDRF current research strategy.
JDRF is driving to increase the amount of high quality type 1 diabetes research funded in the UK, and increase Government focus on type 1 diabetes. As part of these efforts, JDRF embarked on a project to draw a picture of all the type 1 diabetes research that was going on in the UK in 2013. This project allowed us to understand the strengths, weaknesses and opportunities in UK research and identified the barriers to research progress. The result was our Type 1 Diabetes Research Roadmap, which you can read below, or download here.