Public participation and involvement in research
Type 1 diabetes research is not just a researchers’ affair. People with type 1 diabetes and those with a connection to type 1 diabetes should be included too. For research to benefit everybody, everybody should have the opportunity to take part. People from all ethnicities, ages, genders, sexual orientations, religions should be invited to take part.
Don’t know where to start? We created the people with lived experience participation, engagement and involvement in research page to help.
The page includes a few definitions, the benefits of involving people with lived experience, how JDRF can help and a selection of resources with practical tips.
Research resources
We support resources worldwide that are relevant to scientists working in the area of type 1 diabetes and their research. These include:
- Health Data Access Toolkit was launched by the Medical Research Council Regulatory Support Centre to help researchers navigate the processes required to gain access to routinely collected NHS health data. The kit signposts approvals required for research and explores the issues that need to be considered during the application processes.
- Samples for biomarker studies
- Human Pancreatic Islets for Basic Science Studies (PDF download)
- Network for Pancreatic Organ Donors with Diabetes (nPOD)
- ADDRESS-2 is a database, funded by both JDRF and Diabetes UK, of people who have been newly diagnosed with type 1 and their siblings that have consented to be approached to take part in research studies.
- Alan Foulis Collection – The Exeter Archival Diabetes Biobank
- Willy Gepts Collection – The disease process in type 1 diabetes discovered
- Register or search for human tissue samples online – UKCRC Tissue Directory aims to improve the visibility of human tissue samples and data for research purposes.
This list will be updated periodically, but if you would like any resources to be included, contact us at info@jdrf.org.uk.
JDRF reference documents
JDRF Grant Center website contains information for applicants and awardees, JDRF funded research and JDRF current research strategy.
We are driving to increase the amount of high quality type 1 diabetes research funded in the UK, and increase Government focus on type 1 diabetes. As part of these efforts, JDRF embarked on a project to draw a picture of all the type 1 diabetes research that was going on in the UK in 2013. This project allowed us to understand the strengths, weaknesses and opportunities in UK research and identified the barriers to research progress. The result was our Type 1 Diabetes Research Roadmap, which you can read below, or download here.